You are being asked to take part in a research study that asks parents or guardians of high school students with a disability about what options are available to their student or ward after high school. We are asking you to take part because you are the guardian of a student with a disability in the school system in Utah.

The survey should take between 10-15 minutes to complete. Thank you for your participation!
Para versión en español, visite: https://utdspd.typeform.com/to/f6AMUf
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Informed Consent:

What the study is about.
 The purpose of this study is to find out what parents/guardians of students with disabilities believe are post-high school options for their child. This study also hopes to determine what parent/guardians believe are barriers to the student participating in things like competitive employment and higher education. 

What we will ask you to do. If you agree to be in this study, you will fill out a survey with about 30 questions, which should take about 10 minutes. The survey will include questions about yourself, what you would like your student to do after high school, what your student wants to do after high school, view of the teacher’s role in assisting you and your student with post high school options, and what you see as barriers to various post high school options. 

Risks and benefits. There is the risk that you may find some of the questions to be sensitive. If you feel uncomfortable during the survey, you have the right to not answer any questions or stop at any time. There are no direct benefits to taking the survey; however, the results of this study could help influence policy, programs, and contribute to the scientific community. 

Compensation. There is no compensation for taking part in the study. 

Your answers will be confidential. No personal identifying information like name, address, birthdate, etc. will be collected. Data will be stored on a password-protected computer or a locked cabinet only accessed by State of Utah employees that are involved in the study. All paper copies of the survey will be destroyed by August 1, 2018, while an electronic version of survey data will be stored up to until August 1, 2023 on a password protected computer, then deleted.

Taking part in this study is completely voluntary. You may skip any questions that you do not want to answer. If you decide not to take part or to skip some of the questions, it will not affect your current or future relationship with the Division of Services for People with Disabilities (DSPD) or the school your child/ward attends. 

Mandatory Reporting Information. If you disclose any actual or suspected abuse, neglect, or exploitation of a child, disabled adult, or elder adult, we have to report this to the proper authorities consistent with Utah state law. 

IRB Approval Statement. The Department of Human Services Institutional Review Board has approved this research study. If you have any questions or concerns about your rights and would like to contact someone other than the research team about human subjects protection, you may contact Chad Midgley, DHS IRB representative at: cmidgley@utah.gov (801-538-4155), or Frank Rees, DHS IRB Chair at:  frees@utah.gov (801-344-4203). 

If you have questions: the researcher running this study is Emily Crandall. You may contact Emily Crandall at ecrandall@utah.gov or at 1-801-538-4271.

Statement of Consent: I have read the above information, confirm that I am over 18 years old, and consent to take part in the study. I understand by completing the survey, I am providing consent to participate *

     
 
Section 1: Demographics and Background InformationThe information you provide will remain confidential.

Important! If you have more than one student with a disability in your household, pick the oldest one that is in high school.
 
What is your zip code? *

 
What is your relationship to the student with a disability? *


 
What is your age? *


 
What is the age of the student with a disability that resides in your household? *


 
What is your gender? *


 
What is the gender of the student with a disability? *


 
What is the highest level of education you have completed? *


 
What is the current grade level of the student with a disability? *


 
What type of classroom does the student with a disability attend? Check all that apply. *


 
What type of school does the student with a disability attend? *


 
Which of the following best represent your racial or ethnic heritage? *


 
What is the household estimated annual income?

 
How many adults (including yourself) live in your household that are over 18 years? *











 
How many children live in your household that are 17 years or younger? *











 
What is the primary disability diagnosis of the student?


 
Please indicate the severity of the student's disability: *


 
Is anyone in your household currently receiving services from the Division of Services for People with Disabilities (DSPD)? *


 
Is anyone in your household currently on the Division of Services for People with Disabilities (DSPD) waiting list? *


 
Section 2: Post-High School Options

 
Do you plan to enroll the student in a transition school or extended high school until age 22? *


 
Do you anticipate the student to pursue higher education after high school (or after transition/extended high school if applicable)? *


 
To the best of your knowledge, has the student expressed a desire to pursue higher education after high school (or after transition/extended high school if applicable)? *


 
Do you anticipate the student to work full or part time after high school (or after transition/extended high school or higher education if applicable)? *


 
To the best of your knowledge, has the student expressed a desire to work full or part time (after transition/extended high school or higher education if applicable)? *


 
Has anyone from the student's school spoken to you about post-high school options? *


 
Who has spoken to you about post-high school options for your student? *


 
Out of the following options, which organizations or roles currently have the most responsibility in preparing the student to get a job in the community or attend community college/higher education after high school (including teaching soft skills like communication, computers, etc.)?  


 
You said,{{answer_45161998}}'s currently have the most responsibility in preparing the student to get a job or attend higher education after high school, which role do you think has the second highest responsibility in preparing the student?  


 
You said, {{answer_45162003}}'s currently have the second most responsibility in preparing the student to get a job or attend higher education after high school, which role do you think has the third highest responsibility in preparing the student?  


 
Out of the following options, rank the organization or role that should have the most responsibility in preparing the student to get a job in the community or attend community college/higher education after high school (including teaching soft skills like communication, computers, etc.)?


 
You said,{{answer_45163124}}'s should have the most responsibility in preparing the student to get a job or attend higher education after high school, which role do you think has the second highest responsibility in preparing the student?  


 
You said,{{answer_45163174}}'s should have the second greatest responsibility in preparing the student to get a job or attend higher education after high school, which role do you think has the third highest responsibility in preparing the student?  


 
What opportunities do you think are available for your student after high school?

 
Outside of the disability, do you think your teen/student will experience any barriers in pursuing higher education after high school? Why or why not?

 
Outside of the disability, do you think your teen/student will experience any barriers in working full or part time after high school? Why or why not?

 
Which of the following resources are you aware of that can help with transitioning students with disabilities out of high school?


 
If you have any other comments, please express them here:

 
Thank you so much for participating in this study. Your feedback is very valuable to us. We know you are busy and appreciate the time you devoted to participating in this study. If you have any additional questions or would like to obtain a copy of study results, please contact Emily Crandall at ecrandall@utah.gov.


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